Thanks for being here. I get so many messages daily it is so hard for me to keep up. I am going back and forth to Orlando almost every other day.
So here is what has been going on…
For the last 3 years I have had a Malabsorption issue. Instead of getting into details about this issue you can read my latest article here: www.ihadcancer.com/…/09-2…/i-am-fighting-like-hell-every-day
I was originally going to a different cancer center here in Florida when I first moved down here 8 months ago. The Doctor did not listen to my concerns and brushed me off. I ended up in the Hospital because my calcium was very low. The Doctor said it was all in my head when clearly it was on paper that my calcium was critically low. I know when my calcium is low because my entire body gets numb and tingles for hours to the point where my eyes start twitching. I brought my labs to the hospital ( which that same Doctor ordered) and they gave me calcium through IV. Calcium crashes happen often for me ever since my surgery in 2012. I have HypoParathyroidism for the rest of my life.
I ended up researching and finding a better cancer center and I am so glad I did.
After finally being off Thyroid meds through IV I can finally absorb Thyroid meds. I am currently on Armour Thyroid. I take my thyroid medication every morning on an empty stomach. You have to wait an hour to eat. So far so good with the medication. I was on Thyroid meds through Iv and a port for over a year. This entire process was emotionally exhausting. I was not having it anymore being poked and prodded everyday. But, I can’t complain my port saved my life.
For several years my tumor marker ( cancer marker) has been extremely high. When your cancer marker is high that usually means a recurrence or there is current cancer someplace which treatment didn’t “grab.” Since I was diagnosed I been dealing with high TGAB and countless of other symptoms. I just continued on with my everyday life. Until my symptoms got worst. Massive nose bleeds, anemia, bruises all over my body, exhaustion as always to the point where I couldn’t keep my eyes open.
Below is a detailed list of my latest doctor’s visits.
November 15th, 2017, I saw my new neck surgeon for the first time. Showed him my recent labs in the last year and he was quite concerned so he ordered a PET SCAN with contrast. I haven’t had a pet scan done in 10+ years. I didn’t have any recent imaging test that was relevant either.
November 22, 2017- I saw my medical oncologist he diagnosed with mild-severe Lymphedema in my neck. My neck just swells up badly and its quite painful. I need to have treatment done for this soon. My medical oncologist said that if I need neck surgery he wants to test me for a genetic mutation to figure out why I haven’t been cancer free yet.
November 30th, 2017- I found out that my Pet Scan showed so much uptake in my neck area ( thyroid bed). I currently have several cancerous nodules in the neck. However, their main concern was my bones. I was told by my neck surgeon that I have uptake in my bones and in my right femur.
Dec 8th- I saw the orthopedic surgeon for the first time ever he specializes in bone cancer. He told me that I have cancer in my femur but we do not know how bad it is. He suggested a bone scan which I have never done before so I was petrified. The orthopedic surgeon also referred me for a CT scan of my pelvis. He also ordered more labs regarding this type of cancer. Xray was done in the office to rule out “injury” came back fine so we know it is NOT injury related.
Friday December 15th, 2017 I had the bone scan and the CT scan.
So this is basically what has been going on. I am back and forth to Orlando alone while Nick is at work. He takes me on my off days. I have special transportation with my wheelchair and I pretty much try to absorb everything with one ear. Its a lot emotionally and physically exhausting at this point. Don’t forget I also have to travel and hour etc to and from. This gets to be too much. I come home eat and then crash.
I wanted to thank you all so much for all the love and support.
I try to update everyone is for awareness purposes only. It is incredibly important to me to find a cure one day. I don’t have the good cancer like so many people say often.